Support Resources
Verified organizations and resources for caregivers, families, and those seeking information and support.
Organization
Dravet Syndrome Foundation
VerifiedDravet Syndrome Foundation
Dedicated to funding Dravet syndrome research and supporting affected families.
Last reviewed: August 2026
Epilepsy Foundation
VerifiedEpilepsy Foundation
Information, advocacy, and support for people affected by epilepsy and their families.
Last reviewed: August 2026
NORD
Information and support for rare diseases, including Dravet syndrome.
Last reviewed: August 2026
Research
NIH / NINDS
Authoritative information on Dravet syndrome and related neurological research from the NIH.
Last reviewed: August 2026
These resources are provided for informational purposes. The Paige's Promise community is not a replacement for professional medical advice, diagnosis, treatment, or crisis support. If you are experiencing a medical emergency, please contact your local emergency services immediately.